Dare to Think Rare: Why learn about rare diseases?

3.5 million people in the UK suffer from a rare disease, 75% of which are children, and often these diseases are life threatening. This students4rarediseases group aims to bring you into contact with both patients and clinicians in order to educate you on rare diseases. By educating future doctors we can increase early recognition and diagnosis of rare diseases. Identifying and understanding the biological cause of extreme inherited conditions is helping in the research of treatment for common diseases too – a process known as “translational medicine”.

  • 1 in 17 people will be affected by a rare disease at some point in their life.
    Rare Disease UK - www.raredisease.org.uk/
  • Each rare diseases may be rare but together they are common
    students4rarediseases
  • It is more important to know what sort of person has a disease than to know what sort of disease a person has.
    Hippocrates , c400 BC
  • If you hear hooves don't rule out zebra
    Medical School

Learning about rare diseases is vital in a medical student's development.

students4rarediseases is a committee that connects rare disease societies from different medical schools in order to share speaker information and advertise events. We originally founded Barts and The London Society for Rare Diseases in 2011 and expanded the project in the form of S4RD in 2013 so that we can help students in other medical schools to get involved. Our main aim is to create a network in order to pool resources and information about rare diseases. If you would like to get involved please contact us. You can attend events, support the rare disease society at your own medical school or even start your own society if there isn't one.

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Barts and the London

BL Society of Rare Diseases is a new society at Barts and the London School of Medicine and Dentistry that aims to educate future doctors about rare diseases. 3.5 million people in the UK suffer …

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King’s College London

King’s College London Students for Rare Diseases is a newly established society hoping to continue the work done by other universities. 12% of patients wait over ten years to get a diagnosis, and even with …

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Imperial College London

A group of students are in the process of setting up a rare disease society at Imperial and if you would like to be a part of this please contact us using the contact form.

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University College London

For more information on rare diseases at University College London click here.

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St George’s University of London

For more information on rare diseases at St George’s University of London click here.

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Queen’s University Belfast

For more information on rare diseases at Queen’s University Belfast click here.

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BL Rare Diseases

For more information on rare diseases at BL Rare Diseases click here.

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Southampton Medical School

The society in southampton is going to be called the Society for Genetics and Rare Diseases as we want to have emphasis on genetic concepts useful at undergraduate level as well as rare diseases. We …

  • 1 in 17 people will be affected by a rare disease at some point in their life.
    Rare Disease UK - www.raredisease.org.uk/
  • Each rare diseases may be rare but together they are common
    students4rarediseases
  • It is more important to know what sort of person has a disease than to know what sort of disease a person has.
    Hippocrates , c400 BC
  • If you hear hooves don't rule out zebra
    Medical School

Hold your own event to raise awareness of rare diseases

To hold a lecture event at your medical school you will need to be affiliated with a society. In order to start a Rare Disease Society at your medical school you will need to contact either MedSoc or your student union to get more information. Alternatively you could help organise events on rare diseases in collaboration with pre-existing soscities e.g. PaedSoc or NeuroSoc. Once you are able to run events follow the steps below:

  • 1 in 17 people will be affected by a rare disease at some point in their life.
    Rare Disease UK - www.raredisease.org.uk/
  • Each rare diseases may be rare but together they are common
    students4rarediseases
  • It is more important to know what sort of person has a disease than to know what sort of disease a person has.
    Hippocrates , c400 BC
  • If you hear hooves don't rule out zebra
    Medical School

We are a group of doctors interested in thinking outside the box.

In 2011 as a group of 3rd year students we formed the The Barts and The London Society for Rare Diseases for students interested in thinking outside the box and learning about diseases that are not necessarily taught at medical school. We are now Junior Doctors all over the country and voluntarily run S4RD in order to help medical students to Dare to Think Rare!

All of our latest work and some interesting topics are available below.

Everything we have been involved in can be found on this website along with our guest bloggers who discuss interesting subjects within the rare disease topic.

Rare Disease Review

Posted in - Collaboration & Journal
on October 13th, 2016 0 Comments

Student-run medical journal, Rare Disease Review invited us to collaborate! We were privileged and submitted a piece about Students 4 Rare Diseases, why we started and our aims for the future.

To read our entry and …

Read more →